{"id":363,"date":"2023-02-28T16:18:21","date_gmt":"2023-02-28T16:18:21","guid":{"rendered":"https:\/\/wpdev.together-forever.fund\/?post_type=kids&#038;p=363"},"modified":"2025-11-25T13:12:41","modified_gmt":"2025-11-25T13:12:41","slug":"darya-kudrina","status":"publish","type":"kids","link":"https:\/\/together-forever.fund\/en\/kids\/darya-kudrina\/","title":{"rendered":"\u0414\u0430\u0440\u044c\u044f \u041a\u0443\u0434\u0440\u0438\u043d\u0430"},"content":{"rendered":"<p><span style=\"font-weight: 400;\">Daria Kudrina is from the town of Likhoslavl (Tver region, Russia). She was born with a congenital heart defect and a number of other serious diseases: thrombophilia, facial hemangioma (requiring surgery) and complex vascular malformation of the neck and brain. At the age of two and a half, she suffered a stroke.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">After an examination at the Burdenko Research Institute, doctors recommended going to the specialized Children's Hospital Moyamoya Center in Zurich (Switzerland). The specialists there identified a rare association of PHACE syndrome in Dasha.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Its name is an acronym of the first letters of the traits:<\/span><\/p>\n<ul>\n<li><span style=\"font-weight: 400;\">P (<\/span><span style=\"font-weight: 400;\">Posterior fossa<\/span><span style=\"font-weight: 400;\">) - malformation of the posterior cranial fossa,<\/span><\/li>\n<li><span style=\"font-weight: 400;\">H (<\/span><span style=\"font-weight: 400;\">Hemangioma<\/span><span style=\"font-weight: 400;\">) - hemangiomas,<\/span><\/li>\n<li><span style=\"font-weight: 400;\">A (<\/span><span style=\"font-weight: 400;\">Arterial lesions<\/span><span style=\"font-weight: 400;\">) - arterial anomalies,<\/span><\/li>\n<li><span style=\"font-weight: 400;\">C (<\/span><span style=\"font-weight: 400;\">Cardiac abnormalities<\/span><span style=\"font-weight: 400;\">) is a heart defect,<\/span><\/li>\n<li><span style=\"font-weight: 400;\">E (<\/span><span style=\"font-weight: 400;\">Eye anomalies<\/span><span style=\"font-weight: 400;\">) - eye anomalies.<\/span><\/li>\n<\/ul>\n<p><span style=\"font-weight: 400;\">Dasha showed three of the five signs. In addition, another rare syndrome was diagnosed - \u00abstealing syndrome\u00bb, in which the body \u00abredirects\u00bb blood from the head, which can lead to dangerous consequences.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">To minimize the risk of recurrent stroke, a consilium of specialists from a cardiac surgeon, a vascular surgeon, a vascular neurosurgeon and a radiologist developed a three-stage surgery plan. All stages have been successfully performed, with the last surgery taking place in February 2021.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">In the summer of 2023, it was time for a scheduled postoperative follow-up. Its cost amounted to 60,000 \u20ac. Our foundation opened a partial collection for 20,000 \u20ac and thanks to your kind hearts we were able to help Dasha in time.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">On August 18, 2023, at Children's Hospital Moyamoya Center, Daria underwent a comprehensive examination that confirmed successful treatment results.<\/span><\/p>\n<p><span style=\"font-weight: 400;\">Thank you, friends, for giving the girl a chance to live a full life and not be afraid for her tomorrow.<\/span><\/p>","protected":false},"excerpt":{"rendered":"<p>\u0414\u0430\u0440\u044c\u044f \u041a\u0443\u0434\u0440\u0438\u043d\u0430 \u0438\u0437 \u0433\u043e\u0440\u043e\u0434\u0430 \u041b\u0438\u0445\u043e\u0441\u043b\u0430\u0432\u043b\u044c (\u0422\u0432\u0435\u0440\u0441\u043a\u0430\u044f \u043e\u0431\u043b\u0430\u0441\u0442\u044c, \u0420\u043e\u0441\u0441\u0438\u044f). \u041e\u043d\u0430 \u0440\u043e\u0434\u0438\u043b\u0430\u0441\u044c \u0441 \u0432\u0440\u043e\u0436\u0434\u0435\u043d\u043d\u044b\u043c \u043f\u043e\u0440\u043e\u043a\u043e\u043c \u0441\u0435\u0440\u0434\u0446\u0430 \u0438 \u0440\u044f\u0434\u043e\u043c \u0434\u0440\u0443\u0433\u0438\u0445 \u0441\u0435\u0440\u044c\u0435\u0437\u043d\u044b\u0445 \u0437\u0430\u0431\u043e\u043b\u0435\u0432\u0430\u043d\u0438\u0439: \u0442\u0440\u043e\u043c\u0431\u043e\u0444\u0438\u043b\u0438\u0435\u0439, [&hellip;]<\/p>","protected":false},"featured_media":0,"template":"","meta":{"_acf_changed":false,"site-sidebar-layout":"default","site-content-layout":"","ast-site-content-layout":"default","site-content-style":"default","site-sidebar-style":"default","ast-global-header-display":"","ast-banner-title-visibility":"","ast-main-header-display":"","ast-hfb-above-header-display":"","ast-hfb-below-header-display":"","ast-hfb-mobile-header-display":"","site-post-title":"","ast-breadcrumbs-content":"","ast-featured-img":"","footer-sml-layout":"","theme-transparent-header-meta":"default","adv-header-id-meta":"","stick-header-meta":"","header-above-stick-meta":"","header-main-stick-meta":"","header-below-stick-meta":"","astra-migrate-meta-layouts":"set","ast-page-background-enabled":"default","ast-page-background-meta":{"desktop":{"background-color":"var(--ast-global-color-5)","background-image":"","background-repeat":"repeat","background-position":"center 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