The name of the boy in this photo is Daniil. He had congenital lumbosacral myelocele.
When he was an infant, he had his hernia sac removed, later he underwent numerous operations on his legs with plaster cast applied to them. He received several courses of rehabilitation. Ten years later, following a regular MRI scan he was diagnosed with tethered spinal cord syndrome.
Currently he can barely feel his legs. He is using a wheelchair to move around and crutches to walk at home. He is suffering from constant headaches, and a serious pelvic deformity has been noted.