Daria
Kudrina

Daria Kudrina is from the town of Likhoslavl (Tver region, Russia). She was born with a congenital heart defect and a number of other serious diseases: thrombophilia, facial hemangioma (requiring surgery) and complex vascular malformation of the neck and brain. At the age of two and a half, she suffered a stroke.

After an examination at the Burdenko Research Institute, doctors recommended going to the specialized Children's Hospital Moyamoya Center in Zurich (Switzerland). The specialists there identified a rare association of PHACE syndrome in Dasha.

Its name is an acronym of the first letters of the traits:

• P (Posterior fossa) - malformation of the posterior cranial fossa,
• H (Hemangioma) - hemangiomas,
• A (Arterial lesions) - arterial anomalies,
• C (Cardiac abnormalities) is a heart defect,
• E (Eye anomalies) - eye anomalies.

Dasha showed three of the five signs. In addition, another rare syndrome was diagnosed - «stealing syndrome», in which the body «redirects» blood from the head, which can lead to dangerous consequences.

To minimize the risk of recurrent stroke, a consilium of specialists from a cardiac surgeon, a vascular surgeon, a vascular neurosurgeon and a radiologist developed a three-stage surgery plan. All stages have been successfully performed, with the last surgery taking place in February 2021.

In the summer of 2023, it was time for a scheduled postoperative follow-up. Its cost amounted to 60,000 €. Our foundation opened a partial collection for 20,000 € and thanks to your kind hearts we were able to help Dasha in time.

On August 18, 2023, at Children's Hospital Moyamoya Center, Daria underwent a comprehensive examination that confirmed successful treatment results.

Thank you, friends, for giving the girl a chance to live a full life and not be afraid for her tomorrow.