Xyusha
Kovtun

Ksyusha was born with a rare genetic abnormality - Aper syndrome. This is a congenital change in the shape of the skull: in such children, the cranial sutures close before birth, although this usually happens by the age of 3. Because of this, the volume of the skull is limited, the shape is deformed, and increased intracranial pressure can lead to deafness, blindness and disability.

The girl has already overcome a very difficult path, but modern medicine has given her a chance for a full-fledged future. Doctors perform operations to correct the shape of the skull, giving the child the opportunity to develop and live like everyone else.

The course of Xenia's treatment:

• On September 16, 2020, a routine cranial surgery was performed. After the intervention, tissue necrosis formed at the site of the suture due to circulatory disorders. To prevent the spread of infection, it was decided to re-correct the suture.
• On October 18, 2020, Ksyusha underwent a second surgery, which lasted 3.5 hours. Now the girl is gradually recovering, and the Foundation has taken over the payment for the treatment - the cost of the second operation amounted to 9480 $.

Parents' appreciation 

When I wrote to your foundation and you said «yes, we take you!», I was literally jumping with happiness. I didn't know how to put into words this happiness when I realize that there is hope — hope for a healthy future for my child.
I am very grateful to the people who work in this foundation and to everyone who responds to your articles and appeals, to our pain and despair. I am immensely grateful!
This hope for the future was given to me by you. — everyone who has been involved with us, who has responded to our posts. You gave me wings. You gave Xenia and me a future. I am really euphoric now: I look at the child and realize that she will live. Thank you for hope, faith, wings, for our future!

— Ksenia Kovtun's mom.