Alexandra
Manoli

Alexandra is our new foster child from Moldova. The girl is growing and developing at an age-appropriate rate, is able to move independently, and is actively exploring the world; so far, the disease has not caused any pronounced neurological abnormalities in her.

Mom's pregnancy went smoothly: all scheduled examinations and ultrasounds revealed no signs of illness. But immediately after the birth, the parents noticed a large growth measuring about 6–7 cm in the lumbar spine area. This marked the start of a long series of examinations and the search for help.

Alexandra underwent examinations at medical facilities in Moldova and spent several days in the hospital. The doctors diagnosed the girl with spina bifida and explained that she would require complex neurosurgical intervention. It was not possible to perform such an operation in Moldova, so the family was advised to seek specialists abroad.

The parents began seeking help in Europe and contacted the University Clinic of Düsseldorf in Germany. On August 27, Alexandra underwent specialized testing there. Based on the results of the MRI, the doctors identified tethered cord syndrome (Tethered Cord) in the context of intraparenchymal lipoma in a hidden form of spina bifida.

The little girl currently does not have any pronounced neurological disorders; she is developing at the same rate as other children her age and is able to move independently. However, the operation cannot be delayed. German specialists strongly recommend performing it before the girl turns one year old.

In fixed spinal cord syndrome, the nerve structures are in a pathological tension. Over time, this can lead to impairments in motor function, sensitivity, and the functioning of the urinary system.

The operation is planned to be performed by a pediatric neurosurgeon from the University Hospital of Düsseldorf, Univ.-Prof. Dr. Tomas Beez. During the procedure, the doctors must release the fixed spinal cord and reduce the tension in the nerve structures.

The necessary amount of money needs to be collected by mid-December. It is very important not to miss this opportunity and to perform the operation in time, before the disease leads to serious consequences.

Please support the fund for Alexandra and give the little girl the opportunity to grow, develop, and explore the world without the severe consequences of the disease.

You can support Alexander by clicking the button below.