Pasha is the first and long-awaited child in his family. For the first five months, he developed just like any healthy baby—cooing, holding his head up, rolling over, and reaching for toys. However, two weeks after receiving his first vaccination, as advised by a neurologist, strange symptoms appeared: blank stares, red eyes, head tilting, and foam at the mouth. These episodes occurred up to 30 times a day. The doctors delivered a devastating diagnosis: epilepsy.

While treatment and medications provided temporary relief, the seizures worsened with age. Pasha has endured three episodes of status epilepticus — a condition where seizures last up to 1.5 hours, do not respond to medication, and require emergency intervention and ventilation in intensive care. Each of these episodes significantly impacted his development.

Now, at six years old, Pasha faces daily seizures, even in his sleep. His condition has led to divergent strabismus, deformed knee joints, and difficulty walking—he cannot bend his knees or run. Pasha does not speak, cannot understand speech, and does not respond to his name. He is entirely dependent on his parents for everyday tasks.

Genetic testing revealed a gene mutation and the diagnosis of "Focal Cortical Dysplasia." A consultation with Dr. Russi provided a glimmer of hope: preoperative tests at Teknon Clinic in Spain could determine the best course of treatment, offering Pasha a chance at a life free from seizures.

For his parents, every day is a battle for their son’s future. But they cannot fight this battle alone.

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Pasha Axenov’s fundraising is closed!

Thanks to your support, Pasha was able to undergo a consultation with world-renowned epileptologist Dr. Antonio Russi. On July 2, 2025, he underwent a full diagnostic evaluation, including an overnight electroencephalogram (EEG).

The results revealed ten epileptic foci in the right temporal lobe of his brain, which can be treated surgically. Dr. Russi was also able to adjust Pasha’s current treatment plan by prescribing a new medication. We are deeply grateful to everyone who helped Pasha take this important step toward a healthier future.